I love when those fighting SMAS let me know they’ve had a story published. Check out this article of Nichole Everett’s dream of competing in the Olympics: https://www.bustle.com/p/chronic-illness-put-my-olympic-dreams-on-hold-heres-what-its-like-to-watch-the-games-in-pyeongchang-8272336
Many people with SMAS have feeding tubes. Sue Kibby suffers from SMAS and has a feeding tube. She makes products to make your tube not only more comfortable, but stylish. She donates a portion of proceeds to the nonprofit. We’d like to thank her for helping out the nonprofit. Please check out her Etsy shop. https://www.etsy.com/churchmousegifts/listing/578219288/handmade-feeding-tube-pads?utm_source=Copy&utm_medium=ListingManager&utm_campaign=Share&utm_term=so.lmsm&share_time=1517954033798
She also has a Facebook page: https://m.facebook.com/groups/433215317095363
Due to expressed interest we have relaunched our last shirt. This will be the final release of this design.
We appreciate everyone that wore purple and helped educate others about Superior Mesenteric Artery Syndrome. Our next big awareness event is on February 28th which is Rare Diseases Day. We will continue to get our story out there and hopefully get more attention and awareness.
Our 2018 awareness video is posted on our home page and also on youtube. If you have Superior Mesenteric Artery Syndrome and want to be included in the 2019 video, please submit a photo of yourself with your name on the photo (if you’d like it included) to firstname.lastname@example.org
Our 2018 grant application is now uploaded on our “Grants” tab. It is also being included here in this post. If you are unable to open or print it please email us at email@example.com. She will ensure that you get a copy of our application. Health and Human Services has released the 2018 federal poverty guidelines and that has been updated on our website as well, but I am including it in this post for quick viewing. Our nonprofit provides grants to those who fall within the 300% income column.
The 9th Annual SMAS Awareness Day is January 28th. We ask that everyone learn one fact about Superior Mesenteric Artery Syndrome and teach one person about SMAS. If you do this, please post on your facebook #SMASAwareness We are trying to make it go viral this year and need everyone’s help. We also ask that everyone wear purple and post a photo of themselves in purple with the same #SMASAwareness Our facebook page will have more information and facts that you can share with your friends and family. www.facebook.com/smasras
|Persons in Household||48 Contiguous States and D.C. Poverty Guidelines (Annual)|
January 28th is our annual awareness day. You can help raise awareness by purchasing a bracelet or car decal through our “store” tab. Or http://www.smasyndrome.org/store 100% of proceeds goes to our grants fund. Every little bit helps our nonprofit assist those fighting SMAS.
Next week our video will be released as well!!
4th Quarter Applications are due in! Must be postmarked by Dec 15, 2017. Please email questions to firstname.lastname@example.org
We just added a new article on our “Resources” tab, but it can also be viewed from the link below.
This research article would be good to download and take along with you to doctor appointments to share with your doctor if you are not getting the care that you need. It describes the tests that diagnose SMAS, treatment approach, and reason to act quickly.
We also have a twitter page up and going. www.twitter.com/smasras
FEW DAYS LEFT TO ORDER SHIRTS: https://teespring.com/stores/smas-awareness
Pictures to be included in this year’s Awareness video are due by Dec 15! email them to email@example.com
We relaunched shirts due to interest. Toddler size available as well. https://teespring.com/stores/smas-awareness
Please ask your friends to consider purchasing one. By purchasing a shirt they help raise awareness and help fund the Grant Fund!!
Our operating costs are only $300 a year which means the majority of funds raised goes to helping those with SMAS. At 8am EST donations are being matched up to $50,000 per nonprofit. Once the Bill and Melinda Gates Foundation has matched 2 million dollars then no more matching occurs. Please ask your friends and family to consider donating to our little nonprofit. The majority of money raised every year comes from today so please help. The link is posted just below!!
Hopefully this link works. At 8 am est the Bill and Melinda Gates Foundation will begin matching donations. Please consider donating $5. Last year we raised over $1000 which has funded all of our grants this year.