Sue was featured on KTEN News in Texoma helping raise awareness for SMAS. She is traveling to Houston for a drug trial to get medication FDA approved. Please help her out!
https://www.gofundme.com/stand-with-sue
Need to sell three more to print
Good morning everyone! We have been a little behind this year with getting t-shirt designs made. We finally have one completed, another one in the works, and one getting ready to start designing. Please share the link with friends and family asking them to consider purchasing one. There are two benefits to purchasing a shirt. The first being that they are helping us raise awareness for this rare syndrome. The second, every purchase helps fund our SMAS grants fund which allows us to assist those with superior mesenteric artery syndrome.
Second quarter grants are due postmarked by June 15, 2018. If you need one sent to you, email Staci ASAP to Staci.smas.npo@gmail.com
The SMAS Nonprofit offers Grants to ANYONE who is a US resident, is insured, uninsured, employed, unemployed, on disability, food stamps, living alone, with family, an adult, or a child. The only requirement we have is that your Family Income is poverty level X 300%. The guildelines can be found on the website. We encourage you to apply even if you fall outside these guidelines because we may have funds to give to applicants that apply if there aren’t many in any one quarter. And please don’t think you aren’t worthy or someone else needs it more. We work very hard to raise money to help, and if we can’t give this money out, we aren’t achieving the goals of the Nonprofit! You can contact me at: staci.smas.npo@gmail.com Applications and all grant information can be found at http://www.smasyndrome.org/grants
We are currently accepting grants for the second quarter of 2018. The application is uploaded on our grants page, but if you cannot open or print it please email us at staci.smas.npo@gmail.com and one will be mailed out to you. Please remember, if it is an emergency such as needing an immediate surgery then send off your application as soon as it is completed.
Our “Store” has undergone a little update and may continue to be updated in the near future. For now, you must select individual sizes and go through paypal before adding more items. If you’d like to pay only once for multiple items please email us at smasras@gmail.com with the quantity and sizes and a paypal invoice will be emailed back.
I love when those fighting SMAS let me know they’ve had a story published. Check out this article of Nichole Everett’s dream of competing in the Olympics: https://www.bustle.com/p/chronic-illness-put-my-olympic-dreams-on-hold-heres-what-its-like-to-watch-the-games-in-pyeongchang-8272336
Many people with SMAS have feeding tubes. Sue Kibby suffers from SMAS and has a feeding tube. She makes products to make your tube not only more comfortable, but stylish. She donates a portion of proceeds to the nonprofit. We’d like to thank her for helping out the nonprofit. Please check out her Etsy shop. https://www.etsy.com/churchmousegifts/listing/578219288/handmade-feeding-tube-pads?utm_source=Copy&utm_medium=ListingManager&utm_campaign=Share&utm_term=so.lmsm&share_time=1517954033798
She also has a Facebook page: https://m.facebook.com/groups/433215317095363
Our 2018 awareness video is posted on our home page and also on youtube. If you have Superior Mesenteric Artery Syndrome and want to be included in the 2019 video, please submit a photo of yourself with your name on the photo (if you’d like it included) to smasvoices@gmail.com
Our 2018 grant application is now uploaded on our “Grants” tab. It is also being included here in this post. If you are unable to open or print it please email us at staci.smas.npo@gmail.com. She will ensure that you get a copy of our application. Health and Human Services has released the 2018 federal poverty guidelines and that has been updated on our website as well, but I am including it in this post for quick viewing. Our nonprofit provides grants to those who fall within the 300% income column.
The 9th Annual SMAS Awareness Day is January 28th. We ask that everyone learn one fact about Superior Mesenteric Artery Syndrome and teach one person about SMAS. If you do this, please post on your facebook #SMASAwareness We are trying to make it go viral this year and need everyone’s help. We also ask that everyone wear purple and post a photo of themselves in purple with the same #SMASAwareness Our facebook page will have more information and facts that you can share with your friends and family. www.facebook.com/smasras
SMASRAS Grant Application 2018
| Persons in Household | 48 Contiguous States and D.C. Poverty Guidelines (Annual) | |||||||
| 100% | 133% | 138% | 150% | 200% | 250% | 300% | 400% | |
| 1 | $12,140 | $16,146 | $16,753 | $18,210 | $24,280 | $30,350 | $36,420 | $48,560 |
| 2 | $16,460 | $21,892 | $22,715 | $24,690 | $32,920 | $41,150 | $49,380 | $65,840 |
| 3 | $20,780 | $27,637 | $28,676 | $31,170 | $41,560 | $51,950 | $62,340 | $83,120 |
| 4 | $25,100 | $33,383 | $34,638 | $37,650 | $50,200 | $62,750 | $75,300 | $100,400 |
| 5 | $29,420 | $39,129 | $40,600 | $44,130 | $58,840 | $73,550 | $88,260 | $117,680 |
| 6 | $33,740 | $44,874 | $46,561 | $50,610 | $67,480 | $84,350 | $101,220 | $134,960 |
| 7 | $38,060 | $50,620 | $52,523 | $57,090 | $76,120 | $95,150 | $114,180 | $152,240 |
| 8 | $42,380 | $56,365 | $58,484 | $63,570 | $84,760 | $105,950 | $127,140 | $169,520 |
